The Diagnosis
She was a
fighting fit forty-nine when she had to have a hysterectomy. Hysterectomy
cannot be considered an illness. Like menarche and menopause, it has become an
accepted happening. Not so much now as it was in the eighties and nineties. The
year was 1983 and the operation was scheduled for the month of May. The best
gynaecologist in the City was consulted and he, assisted by a close family
friend was to operate on her. The patient was not the bravest of women, but
what helped was her implicit faith in the medical profession. She belonged to
that category of humans who believed that a doctor can never go wrong.
The surgery
went off without a hitch, however, there were a few post-operative glitches
that had to be looked into. Once all of that settled down and her life became
near normal and she started moving around, the family began to take note that
her left hand was involuntarily held in a different way. Soon she started to
complain of pain in her hand. A visit to the family physician demanded that she
see a specialist. Again, the best in the specialty was chosen for a
consultation. When the regular medication did not give any result, the said
specialist asked for an injection which was then not available in India. The
same had to be imported from Singapore and a full course was injected. The pain
remained, but that did not deter her from her routine. Her girls had grown, one
had left the nest, one was soon to become a medical professional and the third
was doing her under graduation. But then she had taken the responsibility of
her nephew who was then in middle school. She continued to run the kitchen with
utmost efficiency. In the meantime, a full-time help was employed to ease the
workload from her. Days progressed and 1984 dawned. The hand pain persisted and
along with it on close examination there seemed to be a slight difference in
her gait. We couldn’t find a reason and just assumed that the nerves were
weakening. She was just fifty. By the end of 1984, there was a slight tremor in
the left hand, it didn’t go unnoticed, and a neurologist was consulted. A
course of Neurobion injection was prescribed and the same was taken.
1985, was a
year of excitement, she was moving to a new house and was busy getting things
done for the house. In fact, she was so involved in the construction and doing
of the interiors of the house that all her ailments took a back seat. There was
no one who could beat her when it came to dedication and hard work. She was
indeed the epitome of beauty and intelligence among other fabulous qualities.
The excitement of moving into the new house really worked as an antidote to her
prevailing health conditions. In 1985, her youngest had finished college and
her nephew was in high school. The live-in help was God sent. She had time on
her hands and would indulge in watching television and movies. The physical
conditions took a back seat and life seemed good to her.
In 1986, she
made a trip to Kerala to be with her mother-in-law who was ailing. While there,
her cousin brother seeing her mild but persistent health conditions, took
her for a consultation with a physician of high repute. When the diagnosis was
made on just examination and the same was conveyed to the family by phone, it
did not mean anything. Nobody had ever heard of the condition and there was no
Google/Wikipedia to enlighten. Even doctors in other specialties could not give
a picture. Although the right diagnosis was made, it did not have any relevance
to the patient or her kith and kin.
A medicine
was prescribed and the same was not available in Kerala. On coming to Madras,
it was available only at Narayanappah Pharmacy (a pharmacy that has a wide
stock of imported medicines). Thus began her tryst with tablet Sinemet (a
combination of carbidopa and levodopa). Yes, she was diagnosed with
Parkinson’s disease, a brain disorder that causes
unintended or uncontrollable movements, such as shaking, stiffness, and
difficulty with balance and coordination.
Did the diagnosis set in any alarms?
Definitely not. As the saying goes, ignorance is bliss.
As the years progressed, life moved
on for her with the help of Tablet Sinemet. It helped that one of the daughters
was able to source the same for her from abroad. The end of the eighties saw
the marriage of her second daughter. She actively participated in the same,
planning and executing the wedding. The early nineties saw the wedding of her
third daughter. By then there was a marked deterioration in her health,
however, she stood her ground. With the three girls having left India and her
nephew moving out after completion of his college, it was just her, her
husband, and the faithful help from 1983. The girls were not informed of every
setback as the husband being strong mentally and physically took it all on
himself. Her health followed a definite pattern. It would move in a plateau and
then suddenly take a deep dive for the worst. Apart from the physical
disabilities which were visible, her mental faculty was deteriorating at an
even faster pace. Hallucinations were the norm and incoherent conversations
were common. Her near and dear ones, although they loved and cared for her
immensely, found this very hard to comprehend. There was no education/support
available to the caregivers. Although it bothered the caregivers, there was
nothing much that they could do.
Towards the beginning of the new
century, when everything was Y2K, there was an intelligent lady who had lost
out on everything. Since her agitation was mostly limited to her physical
inabilities, really wonder how she coped internally. Did she miss her reading,
did she miss her intelligent conversation, or even her ability to converse, did
she miss her morning and evening prayers, did she miss going to the temples,
did she miss meeting with her friends, did she miss writing in her beautiful handwriting,
did she miss her passion for cooking, did she know of her family’s love, did
she miss her occasional visits to the cinema hall, did she miss the way she
called her husband, did she miss her love for the flora, did she miss the world
around??
The diagnosis which did not have the
desired gravity when it was announced, surely rang the death knell for her
family as the years progressed. Wonder how her mind worked!! Without uttering a
word for over six months, she breathed her last on March 5th 2005
at the age of seventy-one. It was then just over twenty years since she had had
the condition and less than that since she was diagnosed. When in 1989, a
doctor mentioned to the family that the physical condition and the mental
faculty of the patient would be beyond belief, nobody gauged the extent.
Its eighteen years since the loss,
and still hard to cope. She was my dear Amma.